*DISCLAIMER: I am not a doctor, therapist, or health professional of any kind. I’m sharing things that I have been taught that have helped me (or not). This is my experience.

Translate

Tuesday, May 31, 2016

Undiagnosed Illness

It's been awhile since my last update.  I feel bad that I don't have anything fun or exciting to write about.  I spend all my time in my room, in bed.  I rarely leave the house except to go to doctor's appointments or for food.

My physical health is not good.  While my pain used to be widespread and non-specific, it is now localized to my joints with some very recent sharp pains in my left side.  My test results have shown high platelets and inflammation.  Nothing else is really off, at least not consistently.  I have a lot of trouble regulating my temperature and usually have a low-grade fever.  I bruise easily.  When my dentist did a pan xray it showed deterioration of my jaw, probably due to some kind of arthritis.  I have been having GI issues and the GI specialist scheduled me for an endoscopy and colonoscopy next month.  I am seeing a rheumatologist on Thursday.

I have to go almost two hours for my rheumatology appointment because the one where I live turned me down for an appointment.  I am hoping if they give me a diagnosis I can be treated somewhere closer to home.  My family has suggested going to Mayo Clinic in Minnesota if nothing comes from the rheumatologist.  That, however, takes prior authorization from my insurance and the trip, stay, and expenses are more than I can afford.  But if I don't get answers or a decent referral to another specialist I will have to try.

I am depressed, but not overly.  I am frustrated and sleep deprived.  I am not very pleasant to be around since I have nothing to talk about other than my health issues.  I tried Cymbalta because it is said to help with fibromyalgia, but it made me manic.  I would try another but the thought of dealing with side effects and how they could affect my diagnosis makes me choose to wait.

I hope I have more interesting things to write about next time.